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Cystinosis Research Grant

Cystinosis Research Foundation

The Cystinosis Research Foundation’s mission is to support bench, clinical and translational research to find better treatments and a cure for cystinosis.

Specialties

General Medicine

Eligibility Requirements

The recipient of any grant award from the CRF must use the funds for the specific purpose for which they were originally intended in the grant or fellowship application. The study must commence by the stated start date and end within the time frame given. If the study is delayed, the CRF must immediately be notified and a detail explanation of the reasons for the delay must be explained and sent to the CRF by email as well as a hard copy via regular mail. If an extension of time is required, the awardee must notify the CRF in writing 60 days before the scheduled end date of the study.
Progress reports are required at regular intervals for the duration of the study and a final report is required and due within sixty days after the completion of the date of the award. The final grant payment will be made to the award recipient(s) upon receipt of the final report. These progress reports should be an executive overview of the study’s progress against key milestones and should include any personnel updates. The progress reports must also include a budget report which shall be a one-page detailed accounting of budget receipts and expenditures. All progress reports should be sent electronically to Nancy Stack at nstack@cystinosisresearch.org. The progress and budget reports will be reviewed and if approved, the next scheduled grant payment will be issued.
Payment for all CRF awards will be made payable to an institution, university, company or equivalent organizational entity. CRF will not make checks payable to an individual, whether that person is the principal investigator or someone within the awardees’ institution. The CRF will issue grant payments in U.S. dollars only.
If the research proposal funded is clinical in nature and requires recruitment of volunteers for the study, the recruitment letter must acknowledge CRF as the source of funding and such recruitment letter must be sent to Nancy Stack, nstack@cystinosisresearch.org to be posted on the CRF web site.
Publications, Presentations and Study Publicity – In all publications and presentations in which Study results are included, credit shall be given to CRF for its funding of the Study. For the sake of uniformity, it is requested that the following acknowledgment be used with all such publications and presentations, “This investigation was supported in whole or in part by [a] grant[s] from the Cystinosis Research Foundation.”

If the study was supported by multiple sources but CRF was the major contributing source, language acknowledging that fact must be used. Once published or presented, a copy of the publication or presentation must be sent to Nancy Stack, President of the Cystinosis Research Foundation via email at (nstack@cystinosisresearch.org) or mailed to CRF at 19200 Von Karman, Suite 920, Irvine, CA 92612 Attn: Nancy Stack

Eligible Countries:

Sponsor Details

Sponsor Institute/Organizations: Cystinosis Research Foundation

Sponsor Type:

Address: Cystinosis Research Foundation, Nancy Stack, President, 19200 Von Karman Avenue, Suite 920 ,Irvine, California 92612, (949) 223-7610, Email: nstack@cystinosisresearch.org

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